Faith is currently critically stable.  She is super critical but for the moment stable.

What started out as a better day than the one before ended at 4:59 when they were preparing to suction her ET tube and she went into cardiac arrest.  They were all there ready to respond and although they did chest compressions for 5 minutes they believe her circulation and oxygenation.  Her followup blood work shows she “tolerated the cardiac arrest well” even what seems like a statement of madness gives us some hope.

No we nor they know the cause of these arrests. For the moment we live minute to minute, then hour to hour and God willing day-to-day.  Only time will tell.  I’m starting to worry that my little girl is losing her fight.

Sue and I are considering relocating the family closer for the next few days.  We will both not be home, the kids don’t want to be so far away. I cannot make another 100MPH dash back into the city in case of another event.  We will try to make a plan if clearer rested heads prevail in the morning.

4 thoughts on “DAY 41 – CHONY/PICU – END OF DAY

  1. God didn’t promise days without pain, laughter without sorrow, or sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way. If God brings you to it, He will bring you through it.

  2. Joe and Sue:

    My heart is breaking for all of you. I am so terribly sorry that I had to go back to CA. Please know that my heart and all my prayers are with you. Sue, always remember, I am your late night call. All my love.

  3. I am praying for your baby and your family… You seem like an amazing family which is just what Faith needs! Don’t feel defeated… I also pray for strength and patience for you! – Trisha M.

  4. I don t now if the first message went through so I’m doing it again. I and so sorry Joe and Sue. I remember when I was in Mrs. Punch with Faith and trying to brush her hair and she would fight me. She is a very special girl and she will always be in my heart. I loved seeing that smile in the morning. God Bless Faith and God Bless you and the family. Love Kim Larese

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