Stable Night

Thank you to everyone who has cross posted and promoted this site, we had the highest number of visits ever yesterday. It helps knowing we are not in this alone and that there are so many praying for our little girl.

  • O2 levels remained very good overnight. They have begun to wean the FiO2 (O2 supplied by ventilator) currently at 45%
  • Still in prone position and seems to be loving it, most natural position for her.
  • Blood pressures have been on the lower end and need some assistance from dopamine and epinephrine to bring them up.
  • Fever still a problem. Why? Not infection.

Sorry for the picture but this is our reality.

More later.

14 thoughts on “DAY 31 – OVERNIGHT – CPMC/CHONY PICU

    • Sweet little Faith, soooo many love and praying for you and your wonderful family. Cant wait to watch you dance to “your music” soon!!! Love you Lots!! Aunt Geralyn

  1. Hang in there, Sue, Happy Nurse’s Day, you are doing your best nursing everyday!!!! Joe, I’m giving you your honorary nurse’s license, and Happy Nurse’s day to you too. I know its been a long road and journey of ups and downs, but keep the “Faith” and take one day, and sometimes even one hour at a time. Everyone is praying your little girl….hugs and kisses to her from her family at the Lawrence School. Love to you all, Pam Flynn

  2. Family, I was up most of the night in prayer for Faith…may the Lord Jesus touch down upon her and heal her, may the Holy Spirit guide the staff to find and fix what ever the issue is. I truly believe in the power of prayer and of having “FAITH” and He is always with us! Hugs and prayers continued for you!!!

  3. Aunt Sue and Uncle Joe. We love you guys. We’re praying for Faith and so is our church and everyone we know. We love you all. Kris, Glen, Drew and Emily

  4. Faith, you are such a beautiful little girl. I am praying for you! Keep fighting Faith!!!
    I have a brother with DS and I can’t imagine how hard this must be for you and family…I will keep praying for you everyday!

  5. My prayers are with you little Faith..and I will pray for you often – even from Denver Colorado. Sending Love to you even though I don’t know you.

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