Very Bad Day

About 8:00AM this morning Faith started to have a period of low O2 that would not rebound.

The next step they took was to “prone her”, basically take her from the position of laying on her back and put her on her stomach, it’s a much more complicated and potentially dangerous procedure than it sounds. It has helped somewhat but may only improve her condition marginally. They were considering using an oscillating ventilator which is only used in very critical situations and as a last-ditch effort to ventilate, that option is not off the table and it sits right outside her room ready for use.

Here is her current status

  • Ventilator induced pneumonia
  • Prone position to help with ventilation
  • Spiral CT with contrast would help so much but she is in no condition to get one right now. It would at least answer “Is this fixable?”.
  • Nitric Oxide levels increased
  • Acute renal failure from ICU, antibiotics, sepsis, diaeresis. Still functioning enough and should fully recover. Worst case would be temporary dialysis.

It’s many many steps back from where we were and need to be. We try to remain positive and are more scared now than at anytime during this adventure. The kids are coming today to visit their sister before any more drastic needs are required. Sue and I will both stay here tonight and her sister Pat will be at home with the kids.

Many prayers are needed, we really don’t know where this is going to lead us our odds are 50/50 at this point but things are currently not getting better.


Every day, I need you Lord, but today especially I need some extra strength to face whatever is to come. This day, more than any other day, I need to feel you near me to strengthen my courage and to overcome my fear. By myself I cannot meet the challenge of the hour. We are frail human creatures and we need a Higher Power to sustain us in all that life may bring. And so dear Lord, hold my trembling hand. Be with me Lord, this day and stretch out your powerful arm to help me. May your love be upon me as I place all my hope in you. Amen

— Pope John XXIII

4 thoughts on “DAY 30 – CPMC/CHONY PICU

  1. Maybe you’re a single mother, you’re struggling with finances, marriage is falling apart, you’re alone, need a touch from God or whatever it may be. Our God will never forsake us. Yes, there’ll be times when we’re laying in bed and cry out to God asking Him if He knows what this pain feel like or how bad we’re hurting inside. He knows it all. He is sovereign and all powerful. In the midst of our crazy trials we tend to fix our eyes on our difficulties but not on Him. What if we fixed our eyes on Him and not our situation? Let all that I am wait quietly before God, for my hope is in Him. Psalm 62:6

    I read this and thought I would share, my heart just breaks and cried when I read this update… Praying for a miracle

  2. Praying as hard as I can for you as I have been. Have everyone I know praying for you. Love you and keep fighting!!

  3. I am still praying 4 faith and your family. May the all mighty god be with u at this time

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