DAY 15 – CPMC/CHONY PICU – 49-45-15

Another good night for Faith & Mom.

Yesterdays blood cultures came back negative which indicates that the antibiotics are working, she will need to be on them for about two weeks. She is slowly adjusting to the ventilator wean but it’s still a while off before we get away from it. She also has a lot of fluids to mobilize and get rid of. The type of bacteria she had causes the veins to get leaky and lots of fluid is lost to surrounding tissue. They infused her with Albumin on Saturday to help suck it all back into the bloodstream so the kidneys could get rid of it.

They pulled the foley today since they think it was the source of infection as her urine cultures were positive. They have also called in infectious diseases on a consult to see what can be done to prevent more infection and make sure her immune system is operating at it’s best. It’s a known fact that kids with Down’s Syndrome can have weakened immune systems.

It’s safe to say she is on the mend back from yet another complication. It is also safe to say that we are not getting out of the hospital anytime soon, which most likely will make inpatient rehab more a possibility. She was so strong after her last discharge we thought that inpatient was a bit of overkill and we might be able to do it outpatient. We will see how she does with time.

The family would again like to thank everyone for all their kindness and help over this whole ordeal, you are so appreciated. Thanks to all of you who take the time to read my rantings about our little girl and her antics.

4 thoughts on “DAY 15 – CPMC/CHONY PICU – 49-45-15

  1. Please give my friend faith a kiss for me… I miss my bus mate! I have had to sing to miss karen and miss nancy by myself.
    Love, you, Bridghid

  2. think of you Faith. Hope you get better soon. So, I can see that WONDERFUL smile of your again.

  3. I miss my sweet little girl blowing me kisses from her window on the bus when I walk out to get my student. Lots of prayers for you Faith and your family….Love Mrs. Bennett

  4. Joe and Sue,

    I just heard about Faith and am sending her well wishes. My family will keep her in our prayers.

    Hugs to all,
    Bethanne McGregor

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