One week anniversary of the start of this folly. I think the kids are starting to hit the exhaustion wall, mental health day soon.
Tuesday was an uneventful day, Faith remains on the ventilator and sedated. ENT was by to consult we are still waiting on them.

Gameplan (as of today)
• Remain on ventilator and sedated for 48-hours
• Next attempt at extubation will be in operating room
o They are better equipped to deal with anesthesia and both waking her up and putting her back out again quickly and comfortably.
o They are most ready and able to intubate again if needed (she isn’t easy)
o They are able to use an optical scope to look at the upper-airway to check for visible trauma, swelling, obstruction, anatomy.
o ABSOLUTE best place to be if anything hinkey occurs.

It’s not all about Faith. Jonathan, Abigail & Jessica have been handling this wonderfully. They are forging through day by day taking care of their responsibilities and really stepping up to contribute to the household needs. This all started at the end of Jon’s first week at his new school (ECLC Chatham, NJ). It has made an already difficult process for him harder. He is doing his best to pull it all together.

Everyone has asked what they can do.
1. Prayers for all.
2. Food. Between gas, tolls, city takeout and and takeout for home it’s financially oppressing. It’s also quite unhealthy and boring to eat fast food every day. Some home cooking would be nice, think real simple foods (kids menu stuff).
3. This is the best way to keep everyone updated, phone calls are draining. If we haven’t called please don’t take it personally. We are keeping those limited to very immediate family.

I’m sure I’ll think of more on my way into the city. I’ll do a mid-morning update from there.


This entry was posted on March 14, 2012, in Status. Bookmark the permalink.